The National Hemophilia Foundation (NHF) will honor Visante CEO James Jorgenson, MS, RPh, FASHP with an Inspiration Award at this year’s Red Tie Soiree. With this esteemed award, NHF is recognizing Mr. Jorgenson’s recent efforts in advancing the Foundation’s mission and for championing the cause of improving the quality and cost-effectiveness of hemophilia care. He has assisted NHF as a distinguished faculty presenter on a number of live and web-based continuing education symposia directed at payer professionals and provides his expertise by serving as a special payer advisor/liaison for the Foundation. Perhaps most notably, Mr. Jorgenson has served as a payer advisor for the Comprehensive Care Sustainability Collaborative (CCSC) since the initiative’s inception in 2014. Developed by NHF in conjunction with Impact Education, LLC, the CCSC is an ongoing quality improvement and cost management initiative driven by the insights of both hemophilia treatment center (HTC) and payer/managed care stakeholders. Over the course of a series of live consensus meetings, CCSC advisors have developed a framework for metric-driven pilot programs incorporating data reporting between payers and HTCs to be replicated across the United States. This first-of-its-kind initiative is aimed at facilitating cost-effective and outcomes-driven hemophilia management integrating the proven HTC comprehensive care model.

NHF works on behalf of children and adults with bleeding disorders as well as their families, advocating for their medical needs and striving to ensure access to care. In addition, NHF facilitates the advancement of treatment for bleeding disorders in the clinical realm. Since 1972, NHF has been awarding grants and fellowships to support innovative research aimed at finding better treatments and cures for bleeding disorders. This research has led to vital insights into improved factor replacement therapies, more accurate hemophilia diagnostic methods, and a greater understanding of the genetic basis of hemophilia. Through the efforts and guidance of the Foundation’s Medical and Scientific Advisory Council (MASAC)—an internationally renowned group of expert scientists, physicians, and other treatment specialists—NHF has long been engaged in advancing the standard of clinical care and issuing treatment recommendations for all bleeding disorders. On the public policy level, NHF supports increased federal funding for research and for the support of HTCs as the centers of excellence in hemophilia care. The Foundation also lobbies to establish improved access to high-quality medical care and the full complement of available treatments, in addition to adequate reimbursement from public and private payers alike.

As a means of bolstering the funding necessary to carry out this important mission, the Red Tie Soiree is an annual gala that recognizes the contributions of leaders and visionaries in the management of bleeding disorders. This year, the event will be held on May 18th at Current at Chelsea Piers in New York City. To show your support for Visante’s own James Jorgensen and partake in an evening of cocktails, cuisine, and auctions, all while contributing to NHF’s noble cause, visit https://www.hemophilia.org/Soiree.

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